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'My first baby should've been a dream - but traumatic birth changed my life forever'

Parenting
 Gill Castle with her husband Chris and son Sam (Image: phoenixfeatures.co.uk)

Placing a protective hand over my bump, I daydreamed about what it was going to be like to give birth.

Pregnant with my first child, I smiled as I imagined the moment our baby would be placed in my arms, my husband Chris and I gazing at him lovingly.

I thought maternity leave would be full of coffee and cake, baby swimming and baby yoga classes.

Sam and I didn’t get to experience any of that. I went into labour six weeks early in October 2011. Sam was “back to back”, which meant I was in a lot of pain and was rushed for an epidural.

“I’m frightened,” I said to a midwife as I was wheeled to the delivery room.

Sam was distressed and his heart rate was dropping, so forceps were used to get him out. It was a chaotic delivery and Sam needed to go straight into special care.

As the epidural wore off, I started shaking with shock. “You’ve had a bad tear,” a midwife explained. It extended from my vagina to my rectum, but I’d been stitched up and presumed I’d get better.

After a few days, I could not understand why I had faeces in my pants, or where it was coming from.

I was in excruciating pain, but when doctors examined me they said the tear was healing.

 Gill has had to adjust to life with the colostomy bag (Image: phoenixfeatures.co.uk)

I didn’t want to cause a fuss, but the pain got worse. A nurse tried to examine me but couldn’t get near me without me screaming. I had to be given gas and air so they could examine me.

I was told I had a fourth-degree tear, a huge abscess and a rectovaginal fistula, which is an abnormal connection between the rectum and vagina.

My only option was to have a colostomy, which would divert faecal matter from the digestive tract through an opening in the abdominal wall, known as a stoma, into a colostomy bag.

I was told the bag would be needed for 12 weeks, to give the wound a chance to heal.

I spent two weeks in hospital and was taught how to clean the stoma. I hated it, but as it was only going to be temporary I tried to cope.

In just three months, I told myself, this would all be over and I could get on with motherhood.

 She was determined to challenge herself after surgery (Image: phoenixfeatures.co.uk)

Catastrophic damage

A month after Sam was born, I received a letter from the hospital saying that the tear should never have happened and an investigation had been launched.

I thought I’d just been unlucky, but it was dawning on me that something really terrible had happened.

I wondered if I’d ever be able to return to the job I loved, in the police force.

The colostomy bag would fill at the most inappropriate times, and it was always leaking. I couldn’t even look after myself, let alone do such a full-on job.

During check-ups, doctors realised the damage to my sphincter was much worse than they thought. I met with the consultant who had delivered Sam and she apologised.

“I don’t want your apology,” I said. “If you hadn’t got Sam out, he would have died. You made a mistake, which has had catastrophic consequences for me, but don’t forget you saved a child’s life.”

I didn’t want to sue, but I needed to be recompensed because I was being medically retired due to what happened.

For my case to progress, I had to have many intrusive, horrific tests.

These confirmed the tear had caused so much damage I’d need a colostomy bag forever. I was diagnosed with postnatal depression and PTSD.

 After surgery, Gill was determined to reclaim her body (Image: phoenixfeatures.co.uk)

Emergency operations

Because of the fistula, every time I exercised and got hot, I got an infection, leading to sepsis. I was put on heavy-duty antibiotics and twice needed emergency operations to drain the sepsis.

Chris worked away on oil rigs so I was often alone with Sam, and I was a mess. We’d be in a supermarket and the bag would suddenly fill and start to leak.

One time, I had to ask a stranger to watch over Sam while I dashed to the loo. I felt so lonely and isolated.

The friends I’d made at a prenatal yoga class had textbook births and were busy enjoying motherhood.

I hid the bag under loose clothes because I was so self-conscious. I had to move slowly due to the fistula, and a walk to the woods near our home which used to take 15 minutes now took over an hour.

It took a year before Chris and I could be intimate again.

I had to be careful of how I held Sam in case he accidentally kicked my stoma. It felt like I was keeping him at arm’s length.

It wasn’t until Sam was seven months old that I gazed down at him and realised I loved him.

I didn’t blame Sam, but I felt angry for the damage his birth had done to me. With therapy, I understood we had been through a trauma together and he was a daily reminder of what happened, but we were both so lucky to be alive.

 Gill had been told she'd never be able to skydive (Image: phoenixfeatures.co.uk)

Looking for hope

When Sam was two, the NHS Trust settled out of court. I spent a lot of time asking, what if this had never happened to me?

I scoured forums looking for hope, but all I found were other people with stomas saying they couldn’t go camping, cycling or swimming.

Once I’d had surgery to fix the fistula, life improved, and I could finally start exercising more. I was overweight and unfit, but I felt determined to reclaim my body and my destiny.

My first challenge was the Chevy Chase 2013, a 20-mile hike across the two biggest hills in Northumberland.

It took almost eight hours, but I did it. Now, with my trusty colostomy bag by my side, I have competed in triathlons and half-Ironmans. I’ve skydived and been wild swimming, wild camping and sea kayaking.

Sam and I took a scuba-diving course, something I was specifically told I’d never be able to do with a stoma. Never let your fears stand in the way of your dreams.

Psychologically, it’s quite a hurdle having sex again with a bag of poo on your stomach, and it does take away the spontaneity as I have to empty the bag before we do anything.

But after 19 years together, it’s not an issue. I wear a band around my waist when in bed as I cannot bear the idea of my bag against my husband’s skin.

This winter, I’m raising awareness for the Birth Trauma Association. I’ll be wearing a bikini for a wild swim, three times a week until May.

Recently, Sam overheard me talking about his traumatic birth and, now nine, he asked, “Is it because of me you need the bag?” I wrapped my arms around him. “I’d take you and the bag, any day,” I said.

I have a different life to the one I envisaged. But the hope that my story inspires others to overcome their trauma has given me new purpose. Maybe I can’t be a police officer, but I can help people in another way.’

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