Mother’s agony: With every child I buried, my world kept crumbling

Nelly Achieng carries her 14-year-old son Philip Otieno who is suffering from Muscular Dystrophy to his bed at their home in Rabuor in Kisumu County. [Denish Ochieng, Standard]

He mumbles as if he has something urgent to say but cannot find the right words. There are moments when he stares into space; lost in his own world. When he wants to move, he signals at his mother Nelly Achieng to carry him.

She is his sole caregiver and says it is one of the most challenging experiences.