Losing my sons to a muscle disease

When Nelly Achieng got married, about 20 years ago, she couldn’t wait to be a mother. And when she held her first baby in her arms, she was sure that she was holding all her life’s dreams in the bundle. “He was a strong healthy boy. We couldn’t have been happier. But at age six, things changed,” she says. 

The boy developed severe muscle pulls, and began walking on toes instead of using the length of his feet. He also couldn’t walk upright.