Struggle with Joubert’s Syndrome: Despite his condition, my son is a fighter

Morgan with his mother [Photo: Courtesy]

Roselyn Kanja’s son, Morgan Odero is only one of four people in Africa, and one of 600 in the world who have Joubert’s Syndrome (JS); but this has not stopped this family from relishing their bundle of joy. 

Morgan is 18 months old. Before he was diagnosed with JS, we got an indication that something was wrong when I was eight months pregnant.