All my five sons were born with rare fatal disease that has no cure

Nelly Achieng carries her fourteen year old son Philip Otieno who is suffering from Muscular dystrophy on October 10,2018 to his bed at their residence in Rabuor in Kisumu county. Nelly has lost three older children to the disease and the remaining two are also affected. (Denish Ochieng/ Standard)

Phillip Otieno, 14, stretches his hand out to wave, but it falls with a slow thud on his laps. When he tries to smile, his lips remain frozen in an uncomfortable frown.